GROWING UP WITH PETER (2/2): '47 Reasons, 63 Excuses, 1 Extra X'
🟢 “Had I been diagnosed earlier, how much more could I have accomplished?” In our previous episode “47,XXY: a 63 Year Diagnostic...
top of page
My XXY
- Jan 23
- 1 min
Technology & Healthcare Leader Dr. Prasun Mishra Joins Chromodiversity™ Foundation Advisory Board
“To those who have dreams but do not act on those dreams, remember you have been given very short time to manifest those ideas. It is not...
880
My XXY
- Jan 17
- 1 min
GROWING UP WITH PETER: A 63 YEAR DIAGNOSTIC ODYSSEY (1/2)
🟢 “95% of my life has been spent not knowing of my 47,XXY. It was like getting into a boxing ring with as your opponent the invisible...
160
My XXY
- Jan 11
- 1 min
"Radical Inclusion" Featuring Jodi Samuels* (2/2)
🟢 "Kindness Kills..." Despite all the talk about diversity and inclusion, why are children with genetic differences and disabilities...
80
My XXY
- Jan 3
- 1 min
"HOW TO PARENT A CHILD WITH DOWN'S", FEATURING AUTHOR JODI SAMUELS (1/2)
🟢 "YOUR CHILD IS A PERSON FIRST, NOT A MEDICAL CONDITION." In this first of two episodes, Jodi is brutally honest about the challenges...
50
My XXY
- Dec 13, 2022
- 1 min
GROWING UP WITH TOBY (2/2): EXTRA X AND INTERSEX
🟢 "We're not a disorder. We're not a syndrome. We're people." [Warning: this episode contains explicit language]. Toby Whittington is a...
50
My XXY
- Dec 5, 2022
- 1 min
GROWING UP WITH TOBY, EXTRA X ENTREPRENEUR, AUSTRALIA
🟢 "Everything that you took for granted is about to be reviewed." Former street performer and fashion designer Toby Whittington is a...
80
My XXY
- Nov 29, 2022
- 1 min
GROWING UP WITH AXYS, FEATURING EXEC. DIRECTOR CAROL MEERSCHAERT
🟢 Who can parents turn to when they learn that their child has Extra X or Y chromosomes? Why are so few people ever diagnosed, and...
50
My XXY
- Nov 22, 2022
- 1 min
GROWING UP WITH MICHAEL (2/2): PARENTING, POLICY, EULOGY
🟢 "He struggled with addiction all his life but was currently on a much better path." In our last episode, Gary Glissman told the story...
60
My XXY
- Nov 17, 2022
- 1 min
World Leading Authority On X&Y Variations Dr. Nicole Tartaglia Joins Chromodiversity™ Advisory Board
🏩 Dr. Nicole Tartaglia is a Professor of Pediatrics at the University of Colorodo School of Medicine, Founder & Director of eXtraordinaY...
110
My XXY
- Nov 15, 2022
- 1 min
GROWING UP WITH MICHAEL (1/2): STRENGTHS, RISKS, DEATH
🟢 "A premature death that could've been avoided in so many ways." Gary Glissman, ex-Chairperson of AXYS, tells the heartbreaking story...
20
My XXY
- Nov 10, 2022
- 1 min
🇦🇺 Genetics & Neurodevelopment Pioneer Dr. David Godler Joins Chromodiversity™ Advisory Board
🏩 Dr David Godler is an Associate Professor at the University of Melbourne, and group leader of Diagnosis and Development Laboratory at...
70
My XXY
- Nov 8, 2022
- 2 min
GROWING UP WITH ALFRED (2/2), EXTRA X AWARENESS PIONEER
🟢 “After diagnosis you are still the same person as before.” Diagnosed at the age of 31 with an Extra X, Alfred Jonker is the President...
120
My XXY
- Nov 1, 2022
- 2 min
Growing Up With Alfred, President Klinefelter Association (1/2)
🟢 “Is it one floor you will build, or is it twenty?” Alfred Jonker is the President of the Dutch Klinefelter Association and a visionary...
50
My XXY
- Oct 25, 2022
- 2 min
GROWING UP WITH KATE (EHLERS-DANLOS SYNDROME)
"My Brain Nearly Fell Out Of My Head". Listen to remarkable #ADHD & #Autistic music educator for #neuroatypicalchildren 🎼Kate O'Brien,...
230
My XXY
- Oct 18, 2022
- 2 min
GROWING UP WITH JESSICA (3 DIFFERENT GENETIC CODES)
🟢 "Embrace Difference, Celebrate Strengths!" Did you know that having more than one genetic code is relatively common? Few people better...
200
My XXY
- Oct 17, 2022
- 1 min
X&Y Variations Authority Dr Claus H. Gravholt Joins Chromodiversity™ Foundation
🏩 Dr Claus H. Gravholt is a world leading authority on X&Y #Chromosome Variations, also called "Sex Chromosome Aneuploidies" (SCAs),...
120
My XXY
- Oct 13, 2022
- 2 min
10,000+ VIEWS, ONE LIFE*
🚀When we launched the term #Chromodiversity in January 2022, by analogy to #Neurodiversity, there was no word to talk about common...
390
My XXY
- Oct 12, 2022
- 1 min
Health Care Leader Gary Glissman Joins #Chromodiversity™ Foundation Advisory Board
🏩 💜A constant advocate for awareness, #education, #research and effective #medical care, few people have made a bigger difference in...
60
My XXY
- Oct 10, 2022
- 2 min
GROWING UP WITH ANITA, PARENT OF 3 EXTRA X BOYS
🟢 “Early intervention is the absolute key.” If having one child with an Extra 47th chromosome is relatively common and can happen to...
100
bottom of page